Welcome to the NI Rare Disease Partnership
Who are we? We are a not for profit organisation, bringing together those living with a rare disease and organisations representing them: clinicians and other health professionals; researchers and...
View ArticleIt’s Rare Disease Day — time for a launch or two!
Local advocates call for action on international Rare Disease Day as shocking new report highlights shortcomings in Health and Social Care for people with rare diseases A new report launched by the...
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Lift off!
NIRDP was formally launched on Rare Disease day with much support from patients, families, health professionals and politicians. We were delighted that the NI Minister for Health, Social Services and...
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